Finley's HOME!

 

Finley, aka Bits, BAB's, baby B, Trouble, Fin....she had many names throughout my pregnancy, is HOME! She came home last Friday. Luca is still in he NICU because she had to be put back on oxygen as her lungs are not as developed as Finley's. The original plan was for Luca to come home the day before Finley but she just tired out too easily when eating & ended up needing the oxygen to help. 

Some of my nurses at the hospital

Finley is doing quite well at home. We have a feeding plan from lactation services at the hospital for her which entails her breast feeding twice/day & bottle feeding (with pumped breast milk) for the other feedings every 3 hours. She sleeps most of the time when not eating but when awake, she just loves to look around at her outside world...it's so cute! She is sleeping in a pack n play in our room for now. She was in the NICU for 6 weeks & 3 days. Anika & Brody love having Finley home! They love to sit by her & Ani wants to hold her & see her "tiny feet" all the time. 

Luca is doing well at the hospital & is weaning down on her oxygen. She should have weaned off by the end of yesterday so they can try her on room air today. If she does well, she'll probably come home by mid to end of week. If she needs to be put back on oxygen, the doc's will order her home oxygen & she'll come home. She would be on a monitor at home & would need follow up with a Pulmonologist. We are leaving it all in God's hands to lead the way. We have rolled with it all this far & continue to trust in The Lord. Has it been easy to do so, not exactly but we know He has a plan for our family. We can only pray that His plan is for us to bring home 2 healthy babies & that he will guide us along the way.

How old are they really? 38 weeks, 1 day gestational age or 6 weeks, 6 days old, or -2 weeks adjusted age....it's all so confusing. Their original due date (full term @ 40 weeks) is March 8th. That's our go to date for when we can start doing things normally, such as...well I'm not sure what normal means :). When we bottle feed them, we have to hold them at a sitting, angled position & pace them. This way the milk goes into their cheek & they can control the amount they are swallowing so they don't choke. We watch them take about 5-7 gulps & then point the bottle down to remind them to breathe. This decreases their chances for brady's (drop in heart rate) or decelerations (drop in oxygen levels). We watch the color in their faces to make sure they are not in distress. Finley is not on monitors at home so it is especially important to watch her. By their due date we can feed them laying down as you feed most babies. Their development by March 8th should be that of a full term baby. They will likely develop a little bit behind other babies their same age (6 weeks, 6 days) but by age 2 they should be caught up. They will need to follow up with the developmental group that saw them at the hospital for the first 2 years. We will go with their birth age of 6 weeks 6 days when saying how old they are, not their adjusted age or due date. They were born January 7th & that's how we'll track them. 

5 weeks old!

Wow, time flies! Luca & Finley are 5 weeks old today. I can't say that it's gone by fast or easy but were glad we've made it! Our days typically go like this; Luca & Finley-they have "touch times" every 3 hours. We need to be there about 15 minutes before their touch time starts to take their temperature & change their diapers so that their feeding can start at their designated touch time to stay on schedule. Luca's touch time is first, Finley's is 30 min after. Hopefully Finley won't develop a "B" complex-always being second :). They can be held, kangaroo (skin to skin) is best. If we hold one, it has to be for the duration of their feeding & then for 10-15 min after feeding is done so their food can settle a little. They are still gavage fed (tube fed) due to their need for oxygen & still learning to eat & breathe at the same time. Finley started trying to nurse Monday & Luca started today.

Luca left, Finley right

My day- depends on which touch time I go to but I typically go to the 11am one. I get up at 7am (after 1-2 times up in the night to "make food" for the girls), pump, have some coffee, see the big kids & watch the Today show for a bit, shower/get ready, leave for the hospital by 9:30. I get to the hospital (drive takes 35-40 min) & again pump, label & check it in to the NICU, go in to see the girls. Start by taking Luca's temp & change her. If holding her, I change into a hospital gown (open to the front) so I can be skin to skin with her. Her  feeding lasts 30-45 minutes right now, has lasted over an hour & a half in he past. The milk is fortified with a powder to add extra calories to the breast milk, is put in a big syringe & into a machine that pushes it through their feeding tube over a specified amount of time. Then it's Finley's turn. If I'm holding Luca the nurse does temp, diaper & tube feed for Finley. I alternate days for holding each one. If I'm holding Finley that day, I am still able to do temp & diaper on Luca, she just stays in her bassinet for her feeding. We've introduced them both to the breast, called nuzzling to get used to it while they are tube fed. Their oxygen has to be at a low enough level to move to each next step for feeding (nuzzling, nippling, bottle). Breast feeding or nipping as they call it in the NICU-because of their prematurity they aren't really able to stay awake long enough to get enough milk so they have to be tube fed after. After 3 days of trying to breast feed they can be bottle fed the feeding times I'm not there to nurse. The whole process from time I leave the house until time I get home is about 4-4 1/2 hours. Then I go home & nap, up by 5 to get dinner ready, eat, kids to bed, some hang out time & then sleep. I'm going to try to go for 2 touch times in a row starting tomorrow so they can both get breastfed each day. I pump every 3 hours during the day, every 4 hours at night. We've had to buy a deep freezer for all of their food, I am absolutely blessed with an abundance of milk for both babies.

Bryan's day-up & gets ready for work at varying times depending on if it's a gym day or not. If t's a gym day, he gets to the gym around 5am then back home to get ready. He goes to work, comes home, eats dinner with me & the big kiddos, goes to the hospital to see the girls. He goes through the same routine with them for their touch times-minus any nuzzling or nipping :). Then home for a little time with me & then sleep. Repeat. We don't get to go to the hospital together very often :(.

1-10-14

1-11-14

Luca

As of yesterday Luca was on .5 liters of oxygen, very low % of O2, Finley was on 0 liters, 100% O2 which they call "going home oxygen". It sounds like Fin is on more but it's less & is better than what Luca is on. Next step is to start weaning her off all together with Luca shortly behind. Both have hit the 5 pound mark which is so huge! We are hopeful that they won't have to come home on oxygen.

Anika & Brody can't wait to meet them! Brody keeps saying "I so cited for our babies to come home!" It's adorable. He colored them a Hot Wheels picture & asked me to hang it for "our babies" to see. It's hanging in their NICU bay along with Ani's My Little Pony pictures. Anika gets upset when we are at the hospital. She tells me she doesn't want me to go & at night she asks over & over again if daddy is at the hospital. I asked if she's afraid I won't come home & she says yes. It's hard to reassure her that I'll come home it she is happy when I do. They have both been a lot more clingy to me since I came home,but the snuggles are nice. They are hanging in there like champs though!

When do they get to come home? Once they get their breathing & eating is down. Then when they do, they have to remain brady free (no heart decelerations) & no low sat's (decelerations in breathing below certain limit) for 5 days in a row. They also need to pass a car seat test hitch means sitting in a car seat for an hour & a half with no issues as well. We don't have a specific discharge date for either of them yet. They can go home at the same time or different times. We are just so happy with their progress & pray hat they continue on his track. Typically a baby who is doing well as they are would go home between 38-40 weeks gestation or by their original due date. They are 36 weeks, 2 days gestation, original due date is March 8th. Please continue to keep them in your prayers.

1-10-14

1-11-14

Finley